FOXG1 syndrome | Joyfully Josie

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Josie's Journey

Through her mama's voice, along the road to find a cure for FOXG1 syndrome

Nicole

Feb 174 min read

Love Through the Eyes of a Rare Disease Medical Mama : A Valentine’s Trip to Cohen's Children's Hospital PICU

Valentine's Day is in the air and the song in my head is, “why does love have to be so sad?” by Derek and the Dominos. As any parent can...

Nicole

Oct 30, 20233 min read

Team Josie's Race to a Cure: You are a circle of good in the world

Since I cofounded the FOXG1 Research Foundation in 2017, "Team Josie" has helped us achieve incredible things. We started with nothing,...

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